The CDKL5 Deficiency Disorder (CDD) Study

Can I Take Part?

Thank you for your interest in FAiRE-CDD.

To learn if your loved one can take part, please answer the following questions:
Answering Yes to all questions will provide prospective patients the ability to search and identify study sites for clinical trial enrollment.

Question of
  • Is she/he between 2 and 35 years old?
  • Does she/he have a variation in their CDKL5 gene?
  • Did she/he experience their first seizure in their first year of life?
  • Does she/he have at least >/= 4 countable seizures per week?
US/CAN (English)